Leader: Rabih Chattat (UNIBO); Other collaborator(s): Ilaria Chirico (UNIBO)
The purpose of this task is to build a structured, multidisciplinary information and training pathway for informal caregivers of people with dementia, with the dual aim of increasing the quality of care and, at the same time, ensuring adequate levels of health and well-being for caregivers by reducing the risks related to caregiving.
The aim is to increase community empowerment, based on the transfer of knowledge and skills that will improve caregiving skills, through a structured and personalized process, with spillover effects on the promotion of home care and health care costs.
Brief description of the activities and of the intermediate results:
There will be 4 phases of the project:
Main policy, industrial and scientific implications
Strengths of the training course will be:
The partners involved in this task have experience in developing educational and training materials and have been involved previously in similar projects. Therefore, the task will benefit from experience in delivering already developed online courses and training modules.
Each task conducted a literature review regarding its topic of expertise. In this case, the literature review aimed to systematize the knowledge gained through the analysis of literature in relation to training needs and educational initiatives directed at formal and informal caregivers caring for the elderly with dementia.
Each task participated in data collection to co-design the platform and its content. Specifically, this task participated conducted the interviews and focus groups with informal caregivers.
Moreover, contributions were presented at national and international conferences.
Each task participated in the construction and revision of the lessons that will constitute the content of the platform. Specifically, this task prepared the following learning modules: dementia and prevention, diagnosis, therapy, the care of the caregiver, services available for caregiver and support communities.
Moreover, contributions were presented at national and international conferences.
During this period, significant progress was made in reviewing and refining the learning modules, ensuring their relevance, clarity, and alignment with the needs of informal caregivers of patients with dementia.
Furthermore, members of this task started collaborating with the external company hired to design the e-learning platform. Meetings were held to review progress, provide feedback, and ensure that the design and development of the platform can be closely aligned with the needs identified in the co-design phase. This collaboration ought to allow for the integration of user-centered features into the platform, with particular attention to user experience, usability, and functionality. The research team aim to ensure that all technological developments remain consistent with the project’s goals of accessibility, equity, and social inclusion.
Furthermore, contributions continued to be presented at national and international conferences.